The interview with Dr. Mario Sussidiario.net Melazzini
Two years Eluana ago was extinguished. While outside, by the courts to newspapers to classrooms parliamentary battle raged unabated, the clinic closed in "The Quiet" in Udine with the neurologist who followed Eluana years, Carlo Alberto Defanti, certifying death due to cardiac arrest, after the medical professionals had stopped feeding and hydration.
"We try to give this day the meaning it deserves: to give voice to voice who has none, but especially to those people who are not heard. And do everything possible to reduce the isolation and abandonment of family and who is under Eluana. The speaker is Mario Melazzini, doctor, suffers from amyotrophic lateral sclerosis. At subsidiary Melazzini says of himself: the illness, an irrepressible will to live, and how we can accept a condition that does not stop to question our reason.
Melazzini, how the story of Eluana touched his life as a man and sick?
He took me to reflect on how a disabled person, linked to a neurodegenerative disease, is seen by a large sector of our society. A society that has treated Eluana not as a person, but only as a body without a soul. The prevailing idea that certain diseases or conditions of severe disabilities are not compatible with a life worth living. It's the same idea that has killed Eluana.
On this the country was divided: 17 years of vegetative state is not a life worth worth living.
No instead, since the dignity of every life has an ontological character and can not depend, as many continue to support its "quality". This is the result of a reduction in both utilitarian and constructivist, who, wishing to liberate humanity from its present condition, denies him any dignity. Nobody, I repeat no one, can decide that a life not worth living.
We have no right to dispose of ourselves, even in a situation so dramatic?
There is much talk of rights, but perhaps we must begin to protect the primary law has the right to life, in all conditions, from conception to natural death, even with the disease. A country wishing to be defined civil must be able to put all of its citizens live with dignity in the condition of the experience of illness and disability.
What hopes, Melazzini?
would suffice for the reminder of this day was not up yet another opportunity for opposing ideologies and positions related to the political spectrum. We should treasure what has happened because it can not happen again, because what happened was an act of total abandonment, abandonment of a person who only needed to be nourished, hydrated and cared for with affection. This is the lesson. A company truly does not kill, but takes care of the weak with love and accompany them along the path of life.
you eat and drink with the help of a feeding tube. How is this condition a disability?
For me it is now the norm. I do not consider either an act of force or an act of violence, and even a therapeutic act. Certainly, who would not rather eat a nice plate of pasta? In our life we \u200b\u200btake for granted many things really. When we encounter an event linked to something that lets us test anxiety as a disease, reject it and this is part of the life of the person human. But today we are fortunate to have the instruments that can guarantee in some way a way of life even in a state of illness, and with dignity.
What will never give up?
to people who are beside me. Just their presence at times, take a look. I infuse the great dignity that sometimes you think you can lose. I am convinced that these simple daily actions can make any of us not so much teaching, but the simple knowledge that everything can continue under certain conditions, as they say, with quality. A quality "reprogrammed" on their way of life, dictated by the circumstances that we can not change.
face a situation like his, so limiting, it is a matter of rationality? Courage? Of faith?
is a path that must be metabolized. It was not easy at the beginning was thinking in the way that happens around us: no, you say to yourself, such a life is impossible. But nothing is impossible if there is an awareness that matures slowly, in a way related to exploration and knowledge of what you can actually sustain the disease. Of course I can only speak from my own experience. But thanks to the disease I have learned to accept my limit.
She is a believer. What place does faith in all this?
faith in me has increased the awareness of being immersed in a mystery that, as such, makes me participate in something bigger than me. It's something that changes in the depth, and supports the rational path of your acceptance of the fact denial, rejection, anger, until it is given to you to accept and understand. Faith leads to knowledge, step by step the mystery that exists and that is why there is a deeper reason for everything that happens, including evil. I'm looking for, thanks to it, to live my situation as an added value, both as man and as a professional, but especially as a patient.
He said that due to illness has learned to accept its limits. What do you mean?
If I were not afraid to be very presumptuous to say that my state is something that takes me and teaches me, gradually. I feel very fortunate in all this, even if they do not hide the fact that I'd rather go back to biking ... But as for now it is not possible - for the moment: never say never - let's move on.
Not everything depends on us, much also depends on the laws. She feels protected his life?
The'd a dual response. As a physician and practitioner, I can say yes. As patient as a person and fragile, however, have little confidence in the interpretation of what is the actual taking charge of the person and their family members from both the prescribing physician and the institutions. It would be essential to put the stakes very solid, because I do not want, on me and on others, that someone may decide to consider as a therapeutic means of life support measures such as nutrition ol'idratazione or ventilatory support, and as such it becomes an object of therapeutic interruption.
two years ago talking about a law that does not come ...
When a person approaches the end, those who well the doctor with their knowledge and belief is able to understand if what you are doing is or is not aggressive therapy. But to address the fact that only one out of ten professionals can assess the situation correctly, it would be important to have something that protects those people are not able to express their will at the present time. The great fear is of failing to protect the most serious weakness, and that certain conditions can become factors of social exclusion and, above all cost.
How heavy is the loneliness in these situations?
can be fatal. I am convinced that certain choices are not dictated by renouncing a rational choice, but from a situation of neglect and high costs, not only economic, which fall only on the person and his family.
In what she says, she seems anything but a prisoner of himself.
may seem like a monstrous situation, but it is not. The paradox is that a condition that it is raining on his head, apparently incompatible with life and constantly mortifying the body, face shine even more all that is in the person, his emotions, his soul. I do this I am learning every day from people who are sick, the love with which they attend to the family, also from the gaze with which these people respond. We are here to touch that infinitely more important to be doing.
(Federico Ferraù)
SOURCE: www.ilsussidiario.net
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